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| At the dealer :D |
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| We may have added some bling... |
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| How it works. |
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| DinnerDad pimped my ride with shagadelic Ikea rugs! |
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| Snail contemplates a Banana - IN OUR CAR!! |
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| It fits two chairs, TWO!! |
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| Lolly looking cute and me peering in. |
:D
Showing posts with label wheelchair. Show all posts
Showing posts with label wheelchair. Show all posts
Sunday, May 5, 2013
So...we got a wheelchair adapted car!!
And it is awesome...
The car has transformed our lives. It's amazing. Just amazing.
:D
:D
Monday, October 1, 2012
Doings - August and September!
Not as many doings as we are normally, well, doing, due to being at home a LOT with Snail. But we get out when we can.
To the wonderful Bush Kindy, organised by a dear and wonderful friend.
Sunny days doing a bird ID walk at bush kindy.
I LOVE that the kids were to "tick" the birds as they spotted the cards, and Lolly drew an actual tick (as in, the little bug). She'd just had a tick on her neck that week, so it was clearly topical. ;)
To Sushi train, where kitty gets salmon.
More sushi train, in which Lolly is so grown up.
Sisters watching Bananas on the iPad.
All of the drawing.
Making the most of an occasional cold August night at our fire pit.
Why yes, Lolly did toast a carrot over the fire as we had no marshmallows! She ate two!
Snail is doing really well. She had to have one of the hip pins out as it had come through her skin (!!) but recovered quickly and we are well into rehab. She is (as of a couple of weeks ago) back in her normal wheelchair, so it's goodbye to the reclining thing we spent 9 weeks in! She's doing great at physio, and standing transfers are close in our future, which will make all our lives a lot easier, especially hers! It's been a hard time, but the light is at the end of the tunnel.
Finally, girls with "pricklefoot" have to use their sister's reclining wheelchairs to recover.
To the wonderful Bush Kindy, organised by a dear and wonderful friend.
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| Treasure hunt collage! |
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| The very start of Spring, already roasting here in Brisvegas! |
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| Ticks :D |
More sushi train, in which Lolly is so grown up.
Sisters watching Bananas on the iPad.
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| "Mummy and Lolly in a house with a sun and birds." |
Why yes, Lolly did toast a carrot over the fire as we had no marshmallows! She ate two!
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| Sad neglected children get toasted carrot. |
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| At one of our post-surgical appointments, around 8 weeks after surgery, at the hospital cafe, traveling in style! |
Tuesday, August 14, 2012
Home again.
Snail is back with us! She's here for three weeks, then, if she's up to it, we'll be back to week about. Transfers are a little hard to say the least at the moment!
We're nearly 4 weeks out from her surgery now, and we're getting there...slowly! Snail still has a fair bit of pain, and isn't eating well. Given that most of her meds are oral (don't ask about the others!) this is a fun time for all. Still, she is getting better every day, which frankly is odd.
Not that she would get better from surgery, of course she would. Her health is basically good, and her immune system works a treat. It's more the weirdness of her having something awful happen that will GET BETTER. We're more used to "oh, that's the suckfullness that is her/our lives now, and we just have to wear it." The CP, the intellectual disability, seizures that just get worse and worse and don't respond to meds well, then the hips, which have been gradually deteriorating for at least a year now (in the acute phase, longer really in terms of decreasing mobility and increasing pain). So yeah, we don't really get things that GET BETTER.
This will, you know, get better. She'll feel gradually better every day. She'll get MORE movement and ability back instead of less. She'll get LESS pain instead of more. When it's all said and done, she'll be better off in a few months than she has been in years. We might even get some mobility back, it's been ages since she could use her walker, or walk supported. So, it's kind of awesome. Though I'm not quite feeling it yet. Cautiously awesome.
We've got another nearly four weeks of splints and the foam wedge that holds her legs and hips in position, then hopefully after her follow-up appointment and x-ray we'll get more of a repreive and can move to just using them at night. Then an intensive couple of weeks of physio at the hospital to get her used to moving again. Then, back to school and regular physio. Can't wait!!
So, that's my mildly coherent update. And here are some shots of our various contraptions, which are numerous! The recliner for relaxed telly watching that we borrowed from her Mum...
The reclining wheelchair, complete with bonus world's fattest cat and our new turtle tank :D
Snail and DinnerDad are camping out in the lounge because we can't get the enormous chair down our tiny hallway. At least it's bright and sunny out there!
There's a hoist too, but apparently I haven't uploaded a pic. Next time. We haven't had to use it yet as the 2-person lift is working fine.
We're nearly 4 weeks out from her surgery now, and we're getting there...slowly! Snail still has a fair bit of pain, and isn't eating well. Given that most of her meds are oral (don't ask about the others!) this is a fun time for all. Still, she is getting better every day, which frankly is odd.
Not that she would get better from surgery, of course she would. Her health is basically good, and her immune system works a treat. It's more the weirdness of her having something awful happen that will GET BETTER. We're more used to "oh, that's the suckfullness that is her/our lives now, and we just have to wear it." The CP, the intellectual disability, seizures that just get worse and worse and don't respond to meds well, then the hips, which have been gradually deteriorating for at least a year now (in the acute phase, longer really in terms of decreasing mobility and increasing pain). So yeah, we don't really get things that GET BETTER.
This will, you know, get better. She'll feel gradually better every day. She'll get MORE movement and ability back instead of less. She'll get LESS pain instead of more. When it's all said and done, she'll be better off in a few months than she has been in years. We might even get some mobility back, it's been ages since she could use her walker, or walk supported. So, it's kind of awesome. Though I'm not quite feeling it yet. Cautiously awesome.
We've got another nearly four weeks of splints and the foam wedge that holds her legs and hips in position, then hopefully after her follow-up appointment and x-ray we'll get more of a repreive and can move to just using them at night. Then an intensive couple of weeks of physio at the hospital to get her used to moving again. Then, back to school and regular physio. Can't wait!!
So, that's my mildly coherent update. And here are some shots of our various contraptions, which are numerous! The recliner for relaxed telly watching that we borrowed from her Mum...
The reclining wheelchair, complete with bonus world's fattest cat and our new turtle tank :D
Snail and DinnerDad are camping out in the lounge because we can't get the enormous chair down our tiny hallway. At least it's bright and sunny out there!
There's a hoist too, but apparently I haven't uploaded a pic. Next time. We haven't had to use it yet as the 2-person lift is working fine.
Thursday, January 12, 2012
More from Christmas!
A few snapshots from Xmas from a sporadic blogger!
So excited about this one, I was so chuffed, as it was all my idea, I'd seen them online, researched, got a prescription, helped to find funding, and now it's here!!!
Twas a grand few days! Thanks go out to my parents, who stayed Xmas Eve and Xmas night, and my SIL L, who stayed a few days too! xo
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| OMG!!! XMAS!!!! |
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| Early Xmas presents! |
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| Convaid Rodeo Stroller Style wheelchair!!! |
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| Best warning sign EVAH |
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| Giant Xmas tree! |
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| Presents!! |
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| Snail gets her switch-adapted Cookie Monster. |
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| Lolly got a million tubs of PlayDo from Smash :D |
Tuesday, October 4, 2011
Sisters
More adorable shots of Lolly hitching a ride on Snail. We were out to lunch recently and a certain set of legs got tired. Snail holds Lolly so tightly, it's lovely.
We sure do get some looks, though, when they're both riding along!
We sure do get some looks, though, when they're both riding along!
Sunday, September 18, 2011
On new chairs!
We took Snail last week for a meeting at the CP League to try some new wheelchairs! This one is the Iris, pretty much like this one. Here she is trying one out!
See the curved bit at the base of the seat? That's the tilt-in-space mechanism, that means we can tilt the whole seat back if she has had a seizure.
We needed to try it out as we need a chair she can self-propel (at home) as well as a Tilt-in-space-able chair. With bigger wheels, she should be able to push this one at home.
Also the handle is awesome, there are brakes at the back (!!), and we're getting a groovy colour!
We also tried the Convaid Rodeo, which is a stroller-style chair, which is more for us to use on weekends, much lighter and more maneuverable. It looks cool!
I don't quite see why it has to be over $3500, when I bought a sturdy stroller for my little kid for $80...but that is life for those with disabilities.
It'll take up to 6 months to get the funding approved and physically get the chairs, can't wait!
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We needed to try it out as we need a chair she can self-propel (at home) as well as a Tilt-in-space-able chair. With bigger wheels, she should be able to push this one at home.
Also the handle is awesome, there are brakes at the back (!!), and we're getting a groovy colour!
We also tried the Convaid Rodeo, which is a stroller-style chair, which is more for us to use on weekends, much lighter and more maneuverable. It looks cool!
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| This, except RED! |
I don't quite see why it has to be over $3500, when I bought a sturdy stroller for my little kid for $80...but that is life for those with disabilities.
It'll take up to 6 months to get the funding approved and physically get the chairs, can't wait!
Saturday, August 20, 2011
Hitching a Ride
Sometimes, when Lolly gets her tired on, she hitches a ride with her sister. It's pretty much the cutest. Excuse the blur!
I love how Snail holds her so tightly, still with the responsiblity of keeping her from falling. It's pretty beautiful.
I love how Snail holds her so tightly, still with the responsiblity of keeping her from falling. It's pretty beautiful.
Sunday, August 7, 2011
Letting it out
I've been doing a lot of stuff for Snail lately, in the background, and occasionally let out some of my frustration while in good company. After a couple of long whinges, just as I am warming up, really, I start feeling like I am the world's worst conversationalist, a champion whinger, Boring McBorey-pants, and all round slack friend.
I should probably say up front, this is NOT about anyone making me feel this way, this all comes pre-installed. No one in my life is actually rolling their eyes or plotting their escape, swearing never to see me again [I don't think...]. Oh no, this is all just what I'm telling myself as I'm talking.
I usually shut up round then.
It's just all really, really big. And sometimes awful. Funding sucks, medical people are not always awesome, no one seems to get anything done, or know what to do, and if you don't ring, and ring, and ring, you don't get called back. Some things are funded and other, really useful and obvious things, aren't. Administration sucks.
For example: in the past couple of weeks, I've been HOURS on the phone dealing with money from a rather large government department that got paid to Snail's mother that should have been split equally between her and DinnerDad, despite every other bit of funding for Snail in the past 8+ years being split 50/50 (as is her custody). Apparently, this payment can't be fixed. "Sorry!" Another government payment got over-estimated, and there goes another two, hour-long conversations, with two different government workers down the time drain (otherwise known as my life).
Here's a selection of what I'm doing or organising at the moment for Snail:
- a stroller style chair which we hope will be more suitable when we're out and Snail has seizures - like these ones!
- a tiltable but still self-propelling capable wheelchair
- dealing with the fact that the funding agency only wants to fund one chair, and also, not yet, as her current chair isn't 5 years old, so should, apparently, still be fine for her (!!)
- picking the chair
- trying to trial different chairs
- getting various physiotherapists to advise on the chairs
- applying for the chairs
- new restraints for our car
- researching adapting our car for wheelchair travel
- boggling at the fact this is funded in at least two other States in Australia, but not the State we live in.
- getting new orthotics prescribed, funded, and fitted (including casting)
- referral and appointments for a big CP centre to see an orthopedic specialist and get a gait assessment
- trying to get an appointment with her old paediatric neurologist, who now no longer takes private patients
- getting her medical records from said specialist
- referrals and appointments with a new epileptologist
- referrals and appointments with the Children's Epilepsy Centre in Melbourne (the only program of its type in Australia)
- the variety of tests (including MRI under general) that need to be done for all these appointments
- trying to coordinate this stuff, as she also needs a hip x-ray (also under general) and we only want one procedure to do both tests
- a new shower chair
- a switch adapter for the Mac
- getting an iPad prescribed and funded (in QLD, the funding body don't fund iPads)
- trialing new nappies, as Snail has grown heaps, and her current ones aren't absorbent enough
- sorting out the funding for nappies (see the above, whoops, we paid it to the mother phone call fun!)
A lot of this stuff takes time, and is frustrating, or turns out not to be possible, or we have to pay for it ourselves, and so on and so forth, ad infinitum. Add on top of this that we don't get on with Snail's mother (at all), and that some of the stuff that Snail deals with now that makes it all necessary is just really fucking sad and depressing and never-ending and worry-about-the-future-ish, you can see that if I start talking about "my day" or "what have you been up to," and I don't stick strictly to the awesomeness of my three year old, that I suck as a conversationalist.
Because what I've been up to is this: I've been dealing with seizures, or DinnerDad's bloodly ex-wife, or some government department, or some medical department, or trying to pick a new wheelchair because Snail gets so many seizures and her current chair is so wildly unsuitable for this that I'm practically housebound in case she seizes, and, and, and..
Now I have to apologise to my blog for boring it to death with my stuff.
I should probably say up front, this is NOT about anyone making me feel this way, this all comes pre-installed. No one in my life is actually rolling their eyes or plotting their escape, swearing never to see me again [I don't think...]. Oh no, this is all just what I'm telling myself as I'm talking.
I usually shut up round then.
It's just all really, really big. And sometimes awful. Funding sucks, medical people are not always awesome, no one seems to get anything done, or know what to do, and if you don't ring, and ring, and ring, you don't get called back. Some things are funded and other, really useful and obvious things, aren't. Administration sucks.
For example: in the past couple of weeks, I've been HOURS on the phone dealing with money from a rather large government department that got paid to Snail's mother that should have been split equally between her and DinnerDad, despite every other bit of funding for Snail in the past 8+ years being split 50/50 (as is her custody). Apparently, this payment can't be fixed. "Sorry!" Another government payment got over-estimated, and there goes another two, hour-long conversations, with two different government workers down the time drain (otherwise known as my life).
Here's a selection of what I'm doing or organising at the moment for Snail:
- a stroller style chair which we hope will be more suitable when we're out and Snail has seizures - like these ones!- a tiltable but still self-propelling capable wheelchair
- dealing with the fact that the funding agency only wants to fund one chair, and also, not yet, as her current chair isn't 5 years old, so should, apparently, still be fine for her (!!)
- picking the chair
- trying to trial different chairs
- getting various physiotherapists to advise on the chairs
- applying for the chairs
- new restraints for our car
- researching adapting our car for wheelchair travel
- boggling at the fact this is funded in at least two other States in Australia, but not the State we live in.
- getting new orthotics prescribed, funded, and fitted (including casting)
- referral and appointments for a big CP centre to see an orthopedic specialist and get a gait assessment
- trying to get an appointment with her old paediatric neurologist, who now no longer takes private patients
- getting her medical records from said specialist
- referrals and appointments with a new epileptologist
- referrals and appointments with the Children's Epilepsy Centre in Melbourne (the only program of its type in Australia)
- the variety of tests (including MRI under general) that need to be done for all these appointments
- trying to coordinate this stuff, as she also needs a hip x-ray (also under general) and we only want one procedure to do both tests
- a new shower chair
- a switch adapter for the Mac
- getting an iPad prescribed and funded (in QLD, the funding body don't fund iPads)
- trialing new nappies, as Snail has grown heaps, and her current ones aren't absorbent enough
- sorting out the funding for nappies (see the above, whoops, we paid it to the mother phone call fun!)
A lot of this stuff takes time, and is frustrating, or turns out not to be possible, or we have to pay for it ourselves, and so on and so forth, ad infinitum. Add on top of this that we don't get on with Snail's mother (at all), and that some of the stuff that Snail deals with now that makes it all necessary is just really fucking sad and depressing and never-ending and worry-about-the-future-ish, you can see that if I start talking about "my day" or "what have you been up to," and I don't stick strictly to the awesomeness of my three year old, that I suck as a conversationalist.
Because what I've been up to is this: I've been dealing with seizures, or DinnerDad's bloodly ex-wife, or some government department, or some medical department, or trying to pick a new wheelchair because Snail gets so many seizures and her current chair is so wildly unsuitable for this that I'm practically housebound in case she seizes, and, and, and..
Now I have to apologise to my blog for boring it to death with my stuff.
Monday, June 20, 2011
Accessibility FAIL: Curbs
Have you ever noticed how steep some of these "accessible" curbs are!? Or how crap they are? Or how many have gaping holes and cracks in them? Or how they often aren't wide enough for a wheelchair?
Or how they lead into ditches or other road architecture?
Or how people at crossings don't make way for you to use them?
All these things piss me off. How bout you?
Play along with Accessibility FAIL.
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| Seriously? |
Or how people at crossings don't make way for you to use them?
All these things piss me off. How bout you?
Play along with Accessibility FAIL.
Friday, January 28, 2011
Disability Fail.
Okay, here's something that upset me this afternoon, Snail's wheelchair came home from school today with this:
This is Snail's chair (the shot I chose is blurry for a reason, so everyone on the interwebs can't read the sign :D). You may, oh...I don't know... manage to spot the GIANT A4 sheet of paper that is attached to it. You know, if you squint.
This is a laminated sheet that each year (sometimes more than once if they notice it's missing) gets attached to Snail's wheelchair. So yeah, she just comes home from school that way. It's full of details, her full name, her parent's phone numbers, her medication, what do to if she has a seizure, when to give meds, when to call the ambulance, and a colour photo.
I totally understand why the school might think its handy, or even, maybe, necessary to have this information nearby the Snail. She is pretty friggin' disabled, and can't tell you this stuff, and given that most of it is about epilepsy, wouldn't be in a position to do so while having a seizure anyway, even if she was cognitively able to. But really? We need to attach giant, conspicuous sheet of A4 paper to the kid's wheelchair!? With her full name and all those details and a photo? Tied on with knotted string so that it's clear it's expected that we're supposed to leave it on the chair while she's at home, too?
Here are my issues: most basically, it's not like her seizure management plan is that hard - if worried, call ambulance; if her lips go blue, or she stops breathing, call ambulance; if seizure lasts for more than 3 minutes, call ambulance.; more than two seizures in a few minutes, call ambulance. These are, trust me, not uncommon things to have in a seizure management plan. She goes to a special school where many children have epilepsy. Her seizure management plan is on the wall of her classroom. Isn't that enough? Plus, frankly, it's just common sense.
More importantly, this sign is not about Snail. It's about disability. Conspicuous disability. It says: "Hi, I'm disabled, I'm not like the rest of you! In case you couldn't tell this from my wheelchair and cerebral palsy and inability to speak more than a few words, here is a giant laminated card for you to look at, too!! Please, feel free to read all about it on this laminated sheet!!"
It is also about "responsibility." It says, "Hey parents, we know better than you! We have decided to add this A4 laminated list of all your child's personal details and information, including a colour photo, to your child's wheelchair. This is for SAFETY!!!11! If you take it off, you're BAD PARENTS and probably want your child to DIE!!!11!!! Also it makes it EASIER for US!! Which is more important that how you might feel about it!! Thank you (though we didn't ask permission). Have a nice day! :D"
Snail's school is awesome, her teachers are ace, but I don't like this sign. Perhaps they just get so used to this shit it doesn't even register? But this sign had me very close to tears when I saw it this afternoon. I'm taking it off now.
This sign is about difference, and it's about lack of respect. You wouldn't attach this sign to a "normal" child. So don't attach it to my "abnormal" one. Respect her, and us.
Thanks.
This is Snail's chair (the shot I chose is blurry for a reason, so everyone on the interwebs can't read the sign :D). You may, oh...I don't know... manage to spot the GIANT A4 sheet of paper that is attached to it. You know, if you squint.
This is a laminated sheet that each year (sometimes more than once if they notice it's missing) gets attached to Snail's wheelchair. So yeah, she just comes home from school that way. It's full of details, her full name, her parent's phone numbers, her medication, what do to if she has a seizure, when to give meds, when to call the ambulance, and a colour photo.
I totally understand why the school might think its handy, or even, maybe, necessary to have this information nearby the Snail. She is pretty friggin' disabled, and can't tell you this stuff, and given that most of it is about epilepsy, wouldn't be in a position to do so while having a seizure anyway, even if she was cognitively able to. But really? We need to attach giant, conspicuous sheet of A4 paper to the kid's wheelchair!? With her full name and all those details and a photo? Tied on with knotted string so that it's clear it's expected that we're supposed to leave it on the chair while she's at home, too?
Here are my issues: most basically, it's not like her seizure management plan is that hard - if worried, call ambulance; if her lips go blue, or she stops breathing, call ambulance; if seizure lasts for more than 3 minutes, call ambulance.; more than two seizures in a few minutes, call ambulance. These are, trust me, not uncommon things to have in a seizure management plan. She goes to a special school where many children have epilepsy. Her seizure management plan is on the wall of her classroom. Isn't that enough? Plus, frankly, it's just common sense.
More importantly, this sign is not about Snail. It's about disability. Conspicuous disability. It says: "Hi, I'm disabled, I'm not like the rest of you! In case you couldn't tell this from my wheelchair and cerebral palsy and inability to speak more than a few words, here is a giant laminated card for you to look at, too!! Please, feel free to read all about it on this laminated sheet!!"
It is also about "responsibility." It says, "Hey parents, we know better than you! We have decided to add this A4 laminated list of all your child's personal details and information, including a colour photo, to your child's wheelchair. This is for SAFETY!!!11! If you take it off, you're BAD PARENTS and probably want your child to DIE!!!11!!! Also it makes it EASIER for US!! Which is more important that how you might feel about it!! Thank you (though we didn't ask permission). Have a nice day! :D"
Snail's school is awesome, her teachers are ace, but I don't like this sign. Perhaps they just get so used to this shit it doesn't even register? But this sign had me very close to tears when I saw it this afternoon. I'm taking it off now.
This sign is about difference, and it's about lack of respect. You wouldn't attach this sign to a "normal" child. So don't attach it to my "abnormal" one. Respect her, and us.
Thanks.
Sunday, November 21, 2010
More adventures with the wheelchair
I haven't posted in forever, and found this in my draft folder! So here 'tis and more coming, I promise! :D I'm doing a post a day in December as a record of our advent calendar adventures, and will post a bit next week while Lolly and I are on holiday!
Here are some more snapshots of our lives with the wheelchair.
Lolly says "it's my chair!"
Two cool sister wheelies.
Snail is funded by the government for trips to and from our place to her special school, so we get a special taxi which is like her school bus. She shares her trip with four or five other kids, including another boy in a chair (the cab takes two chairs). Here she is getting loaded up! The bus comes round 8am and gets her home just after 3pm. I can't tell you how wonderful it is to have this transport to and from school, it was a sanity saver when Lolly was first born! It also saves us a lot of lifting and carrying.
Yikes, lost the photo! Will edit back in tomorrow :D
Snail does have some independent mobility when not in the chair, she has a super huge walking frame that we keep at school, and at home she gets around by bum-sliding. Here she is on the floor having a dance!
Interestingly, Lolly never crawled, she only got around by bumsliding, too! I think she learned it from her sister! Here they are when Lolly is little, bum-shuffling up the corridor to get into mischief!
I love this photo, it's me on the mower and Snail looks like she's racing me :p
One thing about a wheelchair, is that it needs a good clean! Here is the underneath the seat part after we'd taken it apart for a clean. Complicated!
Here are some more snapshots of our lives with the wheelchair.
Lolly says "it's my chair!"
Two cool sister wheelies.
Snail is funded by the government for trips to and from our place to her special school, so we get a special taxi which is like her school bus. She shares her trip with four or five other kids, including another boy in a chair (the cab takes two chairs). Here she is getting loaded up! The bus comes round 8am and gets her home just after 3pm. I can't tell you how wonderful it is to have this transport to and from school, it was a sanity saver when Lolly was first born! It also saves us a lot of lifting and carrying.
Yikes, lost the photo! Will edit back in tomorrow :D
Snail does have some independent mobility when not in the chair, she has a super huge walking frame that we keep at school, and at home she gets around by bum-sliding. Here she is on the floor having a dance!
Interestingly, Lolly never crawled, she only got around by bumsliding, too! I think she learned it from her sister! Here they are when Lolly is little, bum-shuffling up the corridor to get into mischief!
I love this photo, it's me on the mower and Snail looks like she's racing me :p
One thing about a wheelchair, is that it needs a good clean! Here is the underneath the seat part after we'd taken it apart for a clean. Complicated!
Sunday, October 3, 2010
Handy things for the kid in the chair :D
Over the years we've come across a few things that help us out with the realities of Snail's disability, so here are some of them!
These plates - OMG I can't tell you how great they are. The bowl is pretty awesome, too. Under the plate is a fitting for the large suction cup that sticks to the table. The suction cup and curved edge mean she can much more easily feed herself, though she does grump about this a LOT :D They also go through the dishwasher. We have two, and use them every meal, they've lasted really well.
These bendable spoons, though we did notice that going through the dishwasher wasn't a good idea, as water got down the handle :( Still, she did handle the spoon well and it's a great idea. We have a fork as well, but don't use it much as it's very large, a bit big for her mouth.
Brolly sheets. These rock!
These are funky and not just white :D I have two, which I find is plenty for normal washing. They are really effective, and save heaps of washing as they protect the sheets underneath. We also have these chair pads, which we use in the car (since we upgraded the seat of the wheelchair to a waterproof fabric, we don't need em in the chair anymore - thank the gods!)
And the waterproof doona cover, which saves constantly having to wash the doona itself!
I found these at a local baby shop - they fit round the popper juice box, which Snail can never hold herself due to her hands of crushing :D They stop the squeeze of death.
And these are our sippy cup of choice, the Sistema Dinkee cup. We sneakily swap the cup with handles to match with the top with a straw at the shop, lol. Don't tell anyone :D
My final tip is for carrying medication with you when you have a toddler too. Snail has Midazolam for seizures, and we take one vial with us when we go out. I worry heaps about Lolly getting into it, but so far this has worked. We wrap it in alfoil, then put it inside a sealable plastic bag, then put that inside a zip up sunglasses case! It's portable, easy to find, and I feel that it would take Lolly long enough to get inside it for me to find her and stop her! I'm on the lookout for a better solution now Lolly is getting older, something that can lock, but that I can still open relatively easily if I need to use it.
These plates - OMG I can't tell you how great they are. The bowl is pretty awesome, too. Under the plate is a fitting for the large suction cup that sticks to the table. The suction cup and curved edge mean she can much more easily feed herself, though she does grump about this a LOT :D They also go through the dishwasher. We have two, and use them every meal, they've lasted really well.
These bendable spoons, though we did notice that going through the dishwasher wasn't a good idea, as water got down the handle :( Still, she did handle the spoon well and it's a great idea. We have a fork as well, but don't use it much as it's very large, a bit big for her mouth.
Brolly sheets. These rock!
These are funky and not just white :D I have two, which I find is plenty for normal washing. They are really effective, and save heaps of washing as they protect the sheets underneath. We also have these chair pads, which we use in the car (since we upgraded the seat of the wheelchair to a waterproof fabric, we don't need em in the chair anymore - thank the gods!)
And the waterproof doona cover, which saves constantly having to wash the doona itself!
I found these at a local baby shop - they fit round the popper juice box, which Snail can never hold herself due to her hands of crushing :D They stop the squeeze of death.
My final tip is for carrying medication with you when you have a toddler too. Snail has Midazolam for seizures, and we take one vial with us when we go out. I worry heaps about Lolly getting into it, but so far this has worked. We wrap it in alfoil, then put it inside a sealable plastic bag, then put that inside a zip up sunglasses case! It's portable, easy to find, and I feel that it would take Lolly long enough to get inside it for me to find her and stop her! I'm on the lookout for a better solution now Lolly is getting older, something that can lock, but that I can still open relatively easily if I need to use it.
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